Susan Oliver Associates - Independent Rheumatology Nursing Specialists

Patient views
www.healthtalkonline.org Patient stories for all conditions, different age groups and disease severity. www.nao.org.uk National Audit Office – provides access to some patient stories as a result of their report on Rheumatoid Arthritis.	www.patientvoices.org.uk Patient stories. An example of one story of Rheumatoid Arthritis can be seen here. ['Bottom of Things' video 3mb]	www.nras.org.uk Patient stories for Rheumatoid Arthritis and additional resources. Including study on personal experiences through the first 3 years of diagnosis – and what that journey looked like – reflecting the challenges in improving healthcare. Go to mapping the patient journey.

Insights into Social Enterprise
www.socialenterprise.org.uk and www.dh.gov.uk – social enterprise.	Real examples of health care delivery applying social enterprise models can be found at: Department of Health – Social Enterprise. www.dh.gov.uk

Guidelines, Standards & Other Resources
www.arma.uk.net The Arthritis and Musculoskseletal Alliance (ARMA) for standards of care and good practice examples ARMA publications. foot health pdf 3mb inflammatory arthritis pdf 370kb back pain pdf 556kb osteoarthritis pdf 91 kb www.arc.man.uk British Society of Rheumatology Biologics Register providing information on forms to complete and published evidence. www.institute.nhs.uk Innovative approaches to improving patient care and activity. See example showing how ward management reviews using the productive ward approach can improve outcomes. www.jointzone.org.uk Teaching materials supported by arc and ILAR. www.healthtalkonline.org Real stories of patient experiences with different long term conditions. Videos and recordings of individual experiences of health care and their conditions.	www.leeds.ac.uk/acumen/services Academic and Clinical Unit of Musculoskeletal Nursing www.nationalboneandjointdecade.org Information on international work to support musculoskeletal care. www.nice.org.uk Information can be accessed on guidance for the use ofdrug therapies for a range of rheumatological conditions including anti-TNFa therapies, Rituximab and management of osteoporosis. www.nos.org.uk The National Osteoporosis Society have information for healthcare professionals and links to other organisations. www.npsa.nhs.uk National Patient Safety Agency. Information includes guidance on risk management of therapies such as methotrexate and how to advise patients and manage risk. www.painsociety.org The Pain Society	www.pcrsociety.org.uk Primary care rheumatology website with excellent links. www.rheumatology.org.uk British Society of Rheumatology. Access for non members to some Sections of website. (Treatment monitoring guidance) www.rcn.org.uk Royal College of Nursing. Non members can access some areas for guidance documents (eg biologics guidance document).To access the RCN Rheumatology Forum website you will need membership. RCN publictions methotrexate pdf 603kb phone consultation pdf 293kb biologics pdf 556kb Videos of undertaking a joint examination can be accessed via www.nras.org.uk or www.rcn.org.uk